This journey is challenging; it’s a landscape of peaks and valleys.
The first time I found myself in the valley, I was midway through my immunotherapy treatment. I started asking tough questions about my maintenance plan. My oncologist became defensive. “We can just stop the chemo,” she said and walked out. I realized there was no clear plan for my ongoing care. Leaving the oncologist’s office, I cried for the first time since my diagnosis. That was the day I found my voice.
After changing oncologists, I reflected on the healthcare system in Texas, reading insurance notices about being denied Medicaid, and sharing my story. This experience sparked a passion for advocacy. I began researching breast cancer policy locally and federally and became more involved. I noticed much of the policy didn’t address other critical issues such as lymphedema, additional testing, mastectomy products, and insurance claims.
Driven by this realization, I started drafting bills. In 2023, my first bill, the Breast Cancer Expansion Wellness Act (HB4361), was introduced in the 88th Texas Legislative Session. Although it never made it out of committee, I’m determined to revive that bill, along with 4 other bills I’ve written, for the 89th Texas Legislative session in 2026.
In 2023, I founded the Hope Project Initiative organization that provides chemo bags, breast health information, and crafts policy.
How to get involved?
Your involvement can make a real difference. Here are some ways you can contribute:
Political Engagement:
- Locate your representatives in State Legislatures and Congress. Contact them and ask about bills they are sponsoring for breast cancer. (Find out who represents you at [appropriate website])
- Register to vote and exercise your right at Vote.Gov
Advocacy:
- Sign up for emails from various cancer organizations for updates on policy they are advocating for, as well as Congressional Lobby days. Check out American Cancer Society Action Network and Susan Komen Advocacy
- Explore President Biden’s Cancer Moonshot Program for national initiatives
Personal Action:
- Lend your insight – your comments are important. Remember, elected officials work for us.
- Most importantly, share your story. Your voice and experience are valuable.
Two key things to remember:
First, YES, YOU can make a difference
Second, YOU can do this
Never forget, your voice is the most powerful weapon on Earth in the battle against breast cancer; it is your armor in advocating for change.